2nd
International
Symposium on
APS Type 1
WITH SPECIAL THANKS FOR THE GENEROUS SUPPORT OF
2nd International Symposium on APS Type 1 Program Agenda
Stony Brook University
100 Nicholls Road Stony Brook, NY 11794
July 13-15, 2017
Thursday, July 13, 2017
5:00pm-8:00pm
Welcome Reception Simons Center
Friday, July 14, 2017
Charles B. Wang Center
THEATRE
RECEPTION AREA
8:00-8:45
Registration and Breakfast
8:45-9:00
Welcome & Introductions
Mr. Todd Talarico (President of The APS Type 1 Foundation)
9:00-9:30
Introduction to APS Type 1
Dr. Andrew Lane (Stony Brook University Hospital)
9:30-10:30
Responding to Emergencies: Adrenal Insufficiency and Low Calcium
Mr. Todd Talarico (Family Member),
Dr. Olle Kampe (Karolinska Institutet),
Dr. Cheri Deal (University of Montreal)
Dr. Richard Auchus (University of Michigan)
10:30-10:45
Let’s Talk About Registries
Ms. Robin Finch (Family Member, APS Type 1 Foundation)
10:45-11:00
Break
11:00-12:00
Keynote Address
"APECED in 2017: Current Developments and Future Prospects"
Dr. Michail Lionakis (NIH)
12:00-1:00
Lunch
1:00-2:00
Current Thymus Research
Dr. Louise Markert (Duke University),
Dr. Audrey Parent (UC San Francisco)
Navigating the U.S. School System
Ms. Nancy Wilson (The Huntington School District),
Mr. David Seyfert (Family Member, Vision Teacher, Orientation & Mobility),
Mr. Brian Dwyer, M.Ed. (Family Member, Educator)
2:00-2:45
What Type 1 Diabetes Can Learn from APS Type1
Dr. Mark Anderson (UC San Francisco)
Malabsorption in the APS Type 1 Patient
Ms. Sarah Fisher (Family Member)
Dr. Anupama Chawla (Stony Brook University Hospital)
2:45-3:15
Break
3:15-4:00
Immunosuppression: When, Why and How?
Susan Livingstone (Family Member)
Dr. Michail Lionakis (NIH)
Managing Eye Care in APS Type 1
David Seyfert (Family Member, Vision Teacher and Orientation Mobility Instructor)
Dr. Asim Ali (SickKids, Toronto)
4:00-4:30
Conclusions from the Day
Saturday, July 15, 2017
Charles B. Wang Center
Theatre
Reception Area
8:00-8:45
Breakfast
8:45-9:00
Opening Remarks
9:00-10:00
The Broader Implications of APS1 Research
Dr. Bill Robinson (Stanford University),
Dr. Eystein Husebye (Karolinska Institutet),
Dr. Adrian Hayday (Kings College, London)
Dr.Christina Hertel (ImmunoQure)
Fertility Preservation in APS Type 1 Patients
Dr. Suneeta Senapati (Children's Hospital of Philadelphia)
Dr. Justine Witzke (Weill Cornell Medicine)
10:00-11:00
How to Find the Undiagnosed APS Type 1 Patient
Dr. Mark Anderson (UC San Francisco),
Dr. Eystein Husebye (Karolinska Institutet),
Dr. Olle Kampe (Karolinska Institutet),
Dr. Michail Lionakis (NIH)
Young People’s Discussion
Mr. Pablo Ramirez (Patient) to facilitate
11:00-11:15
Break
11:15-12:45
Strategic Planning Session for Researchers and Physicians
Ms. Jennifer Orange (Family Member) to facilitate
Developing our Foundation: Strategic Planning for Patients and Caregivers
Mr. Todd Talarico to facilitate
12:45-1:00
Symposium Conclusions
1:00-2:00
Lunch
Agenda and times of sessions subject to change
