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2nd International Symposium on APS Type 1 Program Agenda

Stony Brook University

100 Nicholls Road Stony Brook, NY 11794

 

July 13-15, 2017

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Thursday, July 13, 2017

5:00pm-8:00pm

Welcome Reception Simons Center

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Friday, July 14, 2017

Charles B. Wang Center

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THEATRE

RECEPTION AREA

8:00-8:45

Registration and Breakfast

 

8:45-9:00

Welcome & Introductions

Mr. Todd Talarico (President of The APS Type 1 Foundation)

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9:00-9:30

Introduction to APS Type 1

Dr. Andrew Lane (Stony Brook University Hospital)

 

9:30-10:30

Responding to Emergencies: Adrenal Insufficiency and Low Calcium

Mr. Todd Talarico (Family Member),
Dr. Olle Kampe (Karolinska Institutet),

Dr. Cheri Deal (University of Montreal)

Dr. Richard Auchus (University of Michigan)

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10:30-10:45

Let’s Talk About Registries

Ms. Robin Finch (Family Member, APS Type 1 Foundation)

 

10:45-11:00

Break

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11:00-12:00

Keynote Address

"APECED in 2017: Current Developments and Future Prospects"

Dr. Michail Lionakis (NIH)

 

12:00-1:00

Lunch

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1:00-2:00

Current Thymus Research

Dr. Louise Markert (Duke University),
Dr. Audrey Parent (UC San Francisco)

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Navigating the U.S. School System

Ms. Nancy Wilson (The Huntington School District),
Mr. David Seyfert (Family Member, Vision Teacher, Orientation & Mobility),

Mr. Brian Dwyer, M.Ed. (Family Member, Educator)

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2:00-2:45

What Type 1 Diabetes Can Learn from APS Type1

Dr. Mark Anderson (UC San Francisco)

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Malabsorption in the APS Type 1 Patient

Ms. Sarah Fisher (Family Member)

Dr. Anupama Chawla (Stony Brook University Hospital)

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2:45-3:15

Break

 

                                                         3:15-4:00                                                         

Immunosuppression: When, Why and How?

Susan Livingstone (Family Member)

Dr. Michail Lionakis (NIH)

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Managing Eye Care in APS Type 1

David Seyfert (Family Member, Vision Teacher and Orientation Mobility Instructor)

Dr. Asim Ali (SickKids, Toronto)

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4:00-4:30

Conclusions from the Day

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Saturday, July 15, 2017

Charles B. Wang Center

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Theatre

                                                                       Reception Area                                                                    

 

8:00-8:45

    Breakfast  

 

8:45-9:00

Opening Remarks

 

  9:00-10:00

The Broader Implications of APS1 Research

Dr. Bill Robinson (Stanford University),
Dr. Eystein Husebye (Karolinska Institutet),

Dr. Adrian Hayday (Kings College, London)

Dr.Christina Hertel (ImmunoQure)

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Fertility Preservation in APS Type 1 Patients

Dr. Suneeta Senapati (Children's Hospital of Philadelphia)

Dr. Justine Witzke (Weill Cornell Medicine)

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10:00-11:00

How to Find the Undiagnosed APS Type 1 Patient

Dr. Mark Anderson (UC San Francisco),

Dr. Eystein Husebye (Karolinska Institutet),

Dr. Olle Kampe (Karolinska Institutet),

Dr. Michail Lionakis (NIH)

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Young People’s Discussion

Mr. Pablo Ramirez (Patient) to facilitate

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11:00-11:15

Break

 

11:15-12:45

Strategic Planning Session for Researchers and Physicians

Ms. Jennifer Orange (Family Member) to facilitate

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Developing our Foundation: Strategic Planning for Patients and Caregivers

Mr. Todd Talarico to facilitate

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12:45-1:00

Symposium Conclusions

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1:00-2:00

Lunch

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Agenda and times of sessions subject to change